I’m not against the Waiver. Nor, do I think it’s wrong to have the Waiver. I believe that government supports are beneficial for those in need. The question is, how do we support those families who will never see a Waiver or other government support? What are we going to do about these people? That [...]
Blog
Apr 28th
Apr 27th
We waived the Waiver and were OK
The change to the Medicaid waiver died last evening and I have mixed emotions about it. Parents and industry leaders filed down to the statehouse to give their two cents and they were successful. For this year anyway. No doubt – it will come up again next year and may pass next time when it [...]
Apr 25th
The Problem with Overselling
I think it’s pretty tough to give something back once you’ve got it. Right? Last week an alert came across my computer that a state senator had dropped some language into Indiana’s state budget bill with some little changes to Medicaid. Actually they’re not that little. And they put them in the budget bill to [...]
Apr 22nd
If I would only get out of the way.
Are you a risk taker? In general, I’m not! Its hard to do something when it is wrapped in fear. Whether the fear is real or something manufactured in your mind is irrelevant. Fear is fear and I think having a child with a disability causes a great deal of fear in parents. When my [...]
Apr 20th
Learning from the movie, “Big”
Are we going along just for the heck of it? I was feeling a little under the weather the other day and found myself on the couch watching one of my favorite films,” Big”. It is the story of a young boy, Joshua, who finds himself in a man’s body when he makes a wish [...]
Apr 18th
A Labels a Label
Have you ever thought that our labels are hurting us? You cannot read a magazine or watch television without a segment on bullying, name calling and the like. We are a nation that is finally taking notice that “sticks and stones” are not the only things that hurt. So I find it somewhat ironic that [...]
Apr 14th
A community of three – a world of many.
Sometimes you just know something was supposed to be. When my daughter was born with Down syndrome back in 1999, a funny thing happened – two of my friends also gave birth to babies with Downs right before me. None of us knew beforehand. What makes it even less likely is that we live in [...]
Apr 13th
The World of the Blue Eyes!
The story you are about to read is true. The names have been changed to protect the innocent. “I am so excited to have a baby. I can’t wait. I have so many dreams for my baby. He or she will have a great life and do so many wonderful things. I just can’t wait. [...]