Blog

Mar 1st

Sorry – No Guarantees!

Posted by with 6 Comments

My blog post from Tuesday about the MaterniT21 blood test really resonated with my readers; the viewership broke every record - exponentially.

During all the excitement, my husband decided to remind me, “You better follow up with something good on Thursday.” Thanks honey.  The fact is, I can’t follow it up.  There are volumes of emotions and hidden innuendo in that blog post and it takes the perfect storm to bring it all together.

Perhaps, however, I can follow up on the message with a little insight.

Yesterday,  I spent quite a bit of time thinking about why 90%+ choose to terminate a pregnancy when they find out the baby has Down syndrome.  And the more I thought about it, the more I felt it came down to something most of us would find to be a rational way of thinking when making this life-changing decision.

Disabilities + baby = sadness, pain, regret, hopelessness….. I could add more.

As humans, we believe this statement to be true as much as we believe 2+2=4.  It is exact. It is without doubt. It is proven.

And yet, undeniably, it is wrong.

Why?

Because, it is based on the premise that if you have a perfectly healthy, non-disabled baby, everything will always be good; as parents, you will be privileged to one Hallmark moment after another.

Now, anyone who has a child knows with absolute certainty that this line of thinking is inaccurate, yet both belief systems catapult every parent into this mental exercise about what they should do when faced with having a child with a disability. Both ways of thinking are inherently wrong and thus any decision based on these untruths is also wrong.

The parent will never get what they truly wanted in the end, which was a happy life.  The perfect baby will never live up to the expectations and the parent will deal indefinitely with the heartache of abortion.  No winners.

I’ll be honest with you, when compared to some of my friends, who have had perfect babies (my thinking, not theirs), I would say the experiences I am having with my daughter with Down syndrome have been no worse, no better. I have had friends bury their perfect babies and fight childhood diseases and cancers.  I have watched them sit helplessly by while their perfect babies subsequently overdose on drugs or become addicts. Some of those perfect babies turned out to be overtly and overly promiscuous, or lazy, and today are a complete drain on society, when they should have been contributors based on their initial Apgar scores.

Our role?

If either equation can be shown to be false, our babies will stand a better chance at life.  Our goal should and needs to be to change equation number one; show our own Hallmark moments.

And I think we already are.

What are you doing to change people’s perception about your child?

 

 

 

 

 

 

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  1. Melissa Cawi
    March 1, 2012 at 10:28 am

    BRAVO!

    Reply
  2. Becky Beaubien
    March 1, 2012 at 2:35 pm

    Oh, I am trying but we are up against such a huge beast! Love this post too…look forward to the next one because three is always a charm! I think I have more hallmark moments now that I have Kristen too…my life is so much more blessed. :)

    Reply
    • Valerie Strohl
      March 1, 2012 at 3:57 pm

      I feel the same way. I think what we can say with the utmost sincerity that our lives are by no means worse because of our girls.

      Reply
  3. Connie Dillman
    March 2, 2012 at 4:33 pm

    Val, you are so right. We have to continue to work to changing their” truths”. By the way, did you know if the numeral system was ternary not decimal then 2+2=11?

    Reply
    • Valerie Strohl
      March 3, 2012 at 8:07 am

      I love your thinking, Connie. By the way, did the research on the Holocaust and how it all began with the elimination of people with disabilities and other “unfit” members of society. You were right, of course. Began in 1933 and they ultimately moved on to the Jewish population. It also confirmed that your associates from Austria were truthful in that there wasn’t a single old person with a disability in their country in the 1980′s. They eliminated all.

      Reply

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